PFC reported that another survey hasnt been undertaken as they have received a
second draft of a protocol from North West Lancs. Health Authority which showed promise
even though it was still in breach of confidentiality and the Patients Charter.
Responses to this have now been sent and a third draft has been prepared. It is hoped that
the 3rd draft can be used as a model. PFC have not been shown a copy of the 3rd draft.
Hammersmith and Charing Cross have closed their list for surgery as they have not
currently got a trained surgeon. Their previous surgeon has retired and they are looking
at re-training. A request was put in for funding for a second surgeon, but this has not
yet been granted.
The Forum discussed whether some HAs are ultra vires regarding their protocols
for treatment, i.e. they are not competent bodies to set standards of clinical care and
have not consulted appropriately with those who are. There was some discussion as to
whether this was worth taking to The Health Service Confederation (previously known as the
National Association of Health Authorities and Trusts (NAHAT)) but Lynne Jones has
previously taken this to them when Phil Hunt (now Health Minister) was secretary. They
were unwilling to tell Health Authorities what to do. DOH Guidelines are needed to tackle
this problem.
It was suggested that we could prepare and circulate model guidelines for HAs to use in
a similar way to the "Current Medical Viewpoint".
In discussion a member of PFC pointed out how many TS people could have received
treatment with the money that will have to be paid out in legal compensation. It was also
mentioned that we need to point out the cost benefit of treatment in comparison with
non-treatment. It was agreed to draft guidelines for Health Authorities, including a
cost-benefit analysis of treatment/non-treatment and that the final document should go via
Lynne Jones to the Minister, with a request that they be forwarded to NICE for evaluation.
Lynne Jones commented that where there is a strong body of consensus amongst experts in
a particular field, there should be a fast track for NICE.
A member of the Forum expressed concern about funding arrangements for specialist
services such as those provided for young people. The Portman and Tavistock Trusts
application for the Gender Identity Development Unit for children and adolescents had been
refused.