All Party Parliamentary Group for Mental Health

Notes of meeting: March 2004

Portcullis House, Westminster

Tuesday 30th March 2004

Members present: Dr Lynne Jones MP (Chair), Dr Evan Harris MP, Baroness Masham of Ilton and Doug Naysmith MP.

Observers: Martin Aaron (JAMI), Matin Ball (Maca), Nick Bosanquet (Imperial College), Philip Dixon-Phillips (Nigel Fisher (SW London Mental Health Trust), Roger Freeman (Royal College of Psychiatrists), Tom Hamilton (Maca), Caroline Hawkings (Turning Point), Sally Hughes (Mind), Sheree Parfoot (CAPITAL), and Agnes Wheatcroft (Royal College of Psychiatrists).

Therapeutic Communities and Possible Treatments for Personality Disorder

Speakers:

·          Dr Kingsley Norton Consultant and Director of Henderson Hospital

·          Dr Rex Haigh Chair Association of Therapeutic Communities

Sarah Paget from the Community of Communities Project and Dr Jan Birtle (Main House Therapeutic Community, Birmingham & Solihull MH Trust) also attended and answered questions after the talks.

Dr Kingsley Norton:

Dr Norton outlined the difficulties surrounding the diagnosis of personality disorder, particularly the stigma attached to it, including prejudice held by the medical profession. The diagnosis is also sometimes used to exclude people from receiving treatment. The condition is enduring rather than episodic and may be the result of previous abuse.

Personality Disorder (PD) can be hard to diagnose, as often there are other conditions present. Also the person can have unrealistic expectations of treatment, a mistrust of professionals and ambivalence towards receiving help. The principles behind treatment are:

·          To see the patients as having complex needs

·          Recognise their strengths and weaknesses

·          Support pro-social development

·          Pursue clear goals

·          Present a realistic image of the world

·          Explore causes and triggers of behaviour

·          Mirror distress and discord to explore responses

·          Empowered staff

·          Make a change if the treatment or location does not work for the patient

·          Provide a seamless service

Dr Rex Haigh:

Dr Haigh addressed the issue of whether PD can be treated, explaining that therapeutic communities (TCs) have been treating PD since the Second World War when group therapy experiments began with soldiers. Patients who join TCs are usually called ‘members’; they have collective responsibility for what goes on in the community including a say in whether new members are accepted. There have been many types of TCs including drugs and alcohol and social psychiatry communities and therapeutic housing. The TCs can also treat young offenders and sex offenders.

There is evidence that these communities provide a very effective treatment as well as being cost-effective. Research is currently being collated for future publication.

The Royal College of Psychiatrists’ Research Unit hosts the Community of Communities project which aims to improve the regulation of TCs and share best practice.

Q&A:

Lynne Jones asked what a typical day would be like in a TC. Dr Norton replied that the day would be taken up with a community meeting which would be chaired by one of the members. Then there would be smaller group meetings. The community would be brought together if there is discord. Drugs are rarely used in TCs. The staff work in multidisciplinary teams including psychiatrists, occupational therapists and psychologists.

Doug Naysmith asked how people are chosen and find out about TCs. The speakers explained that health professionals tell their patients about TCs or patients can self-refer themselves. There will then be a group vote in the community about whether to accept the person.

Baroness Masham asked what the relationship is between PD and schizophrenia. The speakers explained that there are three types of PD including schizoid paranoia and so there is some overlap.

Evan Harris asked what evidence there was to prove the successful outcomes of TCs and whether psychiatrists were united on supporting them. Dr Haigh noted that there has been meta-analysis and randomised controlled trials. Jan Lees said that TCs do not work for everyone but that they can be very effective. The Community of Communities project aims to establish a more uniform model for the structure of TCs.

The Group discussed the question of treatability, which arose in the current Draft Mental Health Bill. The speakers noted that the treatment can be effective when used with people detained in prison though in general TCs are not coercive. The Group also spoke about the stigma attached to PD and how this exists in the health service as well as amongst the public.

Lynne Jones thanked the speakers for their time.

Date of the Next Meeting: 27th April (details will be circulated)

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